Ezzy fundraisers hit £20,000 target
FAMILY and friends of a Thornbury girl are celebrating after reaching their second ambitious fundraising target in her short 5 years of life.
The money will pay for a second operation in America to help Ezzy Hodge walk.
Manorbrook Primary School pupil Ezzy, above, was born two months early, weighing just 3lbs.
At the age of two she was diagnosed with cerebral palsy and her family was told that she would never walk. The condition affects the muscles and restricts mobility.
The operation which can help, known as selective dorsal rhizotomy, was not available on the NHS at the time. It was available privately, but because Ezzy’s hips dislocate, surgeons in the UK refused to treat her.
So her family and their supporters raised the extraordinary sum of £80,000 for her to have surgery in America.
Mum Angela Hodge said: “They find the nerve endings then they cut them and that helps. She will always have cerebral palsy, but the tightness will have gone.
“We came back and she started taking her first steps at Christmas 2017. She still uses a wheelchair and a walker.”
Over the last year, Angela started to notice further issues Ezzy was having.
She said: “Her hamstring isn’t as long as it should be, her toe is starting to come up again, so she’s walking on her toes, and her calf muscle is starting to grow abnormally.”
The family was told that if left uncorrected, Ezzy would be unable to walk independently.
Ezzy, her family and supporters at Old Down Country Park
This month the family is going back to America for another operation, where an incision will be put in the muscle to bring Ezzy’s heel down to enable her to walk.
Angela said: “We are very anxious as well as excited for the operation. We are extremely grateful for everyone’s kind generosity in helping to reach our target, we couldn’t thank everyone enough for all their support.”
“We do still have a few events left and any extra money will help towards a wheelchair and gait analysis which will be extremely important to help with Ezzy’s rehabilitation following her surgery. “
A recent fundraising picnic with children’s activities at Old Down Country Park was a success.
Angela said: “It was a fantastic event and we all had so much fun.”
You can donate to Ezzy’s campaign at her page on online fundraising site JustGiving, which can be found at bit.ly/2ElrOtL.